Hemophilia without disability, Children free of pain
Our Mission
To locate undiagnosed “Persons with Hemophilia (PWH)” To educate and provide proper information on Hemophilia Care to affected Persons with Hemophilia, their families and the medical fraternity.
To make treatment available at affordable cost.
AHF Support, Medical Help, Prevention of Hemophilia, Training Medical Fraternities, Awareness, Medical Camps, Physiotherapy, Educational Support to poor CWH, Psycho-social Support, Youth Development, Women Empowerment, Economic Rehabilitation, Lobby & Advocacy.
We aim to reach out to PwH and provide total quality care, education, make treatment available at affordable cost, psycho-social support, and economic rehabilitation and thus help them in improving the quality of life without disability and free of pain.
Hemophilia
Hemophilia is an inherited bleeding disorder. In majority patients either clotting factor vii is in low
level (Hemophilia A) or clotting factor ix is deficient (Hemophilia B). For the management of hemophilia, a patient needs to be transfused purified factor preparation or cryoprecipitated plasma. This makes patient
susceptible to transfusion transmitted infections.
History of Hemophilia
Although effective treatment has only become available in recent decades, Hemophilia was known to the ancient world. The earliest written references to what appears to be Hemophilia are encountered in Jewish texts of the second century AD. Rabbinical rulings exempted male boys from circumcision if two previous brothers had died of bleeding after the procedure. The Jewish physician Moses Maimonides (1135-1204) applied this ruling to the sons of a woman who had married twice, thus apparently appreciating the hereditary nature of the condition.
Hemophilia – The Royal Disease
Hemophilia is sometimes referred to as “the royal disease” because several members of noble families in Europe were affected by it. Queen Victoria had no ancestors with the condition but soon after the birth of her eighth child, Leopold, in 1853, it became evident that he had Hemophilia. Queen Victoria was thus an example of how the condition can arise as a spontaneous mutation.
Donate Us!
A/C NAME: HEMOPHILIA SOCIETY OF RAJKOT CHERITABLE TRUST
BANK NAME: KARNATAKA BANK LTD.
BRANCH NAME: RAJKOT
A/C TYPE: CURRENT
A/C NUMBER: 6582000100114701
IFAC CODE: KARB0000658
Your Little Help Saves One Life!
“All your donations to Hemophilia Society Rarjkot are 50% Tax Exempted Under Section 80G of Income Tax Act, 1961.“