What We Do
Our organization provides an integrated ecosystem of medical aid, diagnostic facilities, physiotherapy, emotional guidance, and economic empowerment to improve the quality of life for persons with hemophilia (PWH) and their families.
Our Core Mission
Reaching out to all persons with hemophilia across Saurashtra to provide comprehensive, total care and eliminate bleeding-related disability through:
- Affordable and emergency access to clotting factor concentrates.
- Patient, parent, and community education on bleeding prevention.
- Advocacy with government health departments and hospitals.
- Scientific research and support for prenatal screening.
Medical & Diagnostic Care
Direct clinical and laboratory services offered through our specialized center:
- Factor Availability: Supply of AHF Factor VIII & IX at free or highly subsidized rates.
- Diagnostic Testing: In-house Factor Assay and coagulation profile testing.
- Daily Physiotherapy: Free specialized rehabilitation to prevent joint deformities.
- Specialist Panel: Pediatricians, Orthopedic surgeons, Hematologists, and Dentists.
- Vaccination: Hepatitis B and preventative immunization for registered PWH.
Rehabilitation & Projects
Holistic programs designed to empower patients socially and economically:
- Save One Life Project: Direct sponsorship and financial assistance for needy children.
- HANS Project: Joint health assessment and mobility assistance programs.
- Hemophilia Utthan Karyakram: Vocational training and skill empowerment.
- Psychosocial Support: Regular family counseling and parent-peer support sessions.
- Educational Outreach: Gujarati awareness literature, seminars, and medical camps.
Chapter Milestones & Impact
425+
Registered Members
320+
Factor Assays Done
275+
Vaccinations Completed
180+
Carrier Studies
Specialized Camps & Outreach Programs
Throughout the year, our society conducts multi-specialty clinical camps including:
- Physiotherapy & Rehabilitation Camps: Tailored joint exercises, mobility assessments, and customized orthotic splints.
- Carrier Detection & Antenatal Guidance: Helping affected families understand genetic risk factors and prenatal diagnostic options.
- Youth & Women Empowerment Summits: Leadership training, self-infusion workshops, and peer motivation gatherings.
- State-Level Awareness Camps: Continuing Medical Education (CME) seminars for physicians, pediatricians, and nurses across Gujarat.